Meeting of Patient Organizations with Journalists I.
Patient organisations are an indispensable part of our healthcare system. They are often founded and run by patients themselves or their relatives who are actively addressing the difficult life situation of their loved ones. Without any remuneration and in their own time. In the last ten years they have become respected partners of state institutions. However, the problem is still funding, which has been exacerbated by the current economically unfavourable situation. Patient organisations therefore need around 70 million euros for their operating costs for the next year. They have submitted a proposal to the Ministry of Health.
The topic is being addressed today by representatives of patient organisations at a meeting with journalists as part of the Academy of Patient Organisations (APO) educational project.
Patient organizations are represented by:
- Jitka Reineltová, Parent Project CR, with Martin Krček, muscular dystrophy patient
- Lucie Zackova, Nedoklubko.cz
- Simona Zábranská, Czech Cystic Fibrosis Association
- Petra ADÁMKOVÁ, Patients’ Voice, with Nikol Pazderová, patient
This topic was also commented on by David Kolář, Executive Director of our association, which founded the Academy of Patient Organizations eleven years ago.
“In the last ten years, patient organisations have gone an admirable way and I am glad that the Academy of Patient Organisations (APO) has contributed to this by offering a platform for patients to learn, share experience and make new contacts. It is apparent that through their activities, patient organisations complement and, in some cases, even replace activities of state institutions. They therefore deserve more attention from the state, which should advocate transparent, predictable and systematic funding of their activities.”
For the press release and other material from the event see below:
DISEASE AND PATIENT ORGANIZATION
Foto č. 1 - Lucie Žáčková, Nedoklubko
Foto č. 2 - Jitka Reineltová, Parent Project
Foto č. 3 - Simona Zábranská, Klub nemocných cystickou fibrózou
Foto č. 4 - Networking
Foto č. 5 - Networking
Foto č. 6 - Petra Adámková, Hlas pacientů
