HTA IV. 2021
The follow-up educational program "Involvement of patient organizations in the procedure for determining the price and reimbursement of a medicinal product for the treatment of rare diseases" was organized by the Ministry of Health of the Czech Republic in cooperation with the AIFP on 2nd, 3rd, and 10th December at the Ministry of Health of the Czech Republic.
This time the Intensive program was held mostly in the form of workshops.
Topics of the program:
- Principles for reimbursement of medicinal products intended for the treatment of rare diseases - introduction of the intention
- Assessment of the criteria in the procedure for determining the amount and conditions of reimbursement for a medicinal product intended for the treatment of rare diseases
- Statement of the patient organization
- Case study assignment
- Procedure at the State Institute for Drug Control and statement of the patient organization
- Workshop – work with case study
- Work with case study – evaluation / recommendation
- Advisory body of the Ministry of Health for the reimbursement of medicines intended for the treatment of rare diseases
Lecturers:
Ms. Daniela Rahmaniová, Department of Medicines and Medical Devices, Ministry of Health CR
Mr. Milan Vocelka, Price and payment regulation section, State Institute for Drug Control
Mr. Tomáš Doležal, Czech Society for Pharmacoeconomics and Health Technology Assessment
Ms. Jana Skoupá, Czech Society for Pharmacoeconomics and Health Technology Assessment
Photos:
No.1 Representatives of patient organizations
No.2 Mr. René Břečťan, Vice Chairman, Czech Association for Rare Diseases, and Vice Chairman of executive committee, Parent Project Czech Republic
No.3 Ms. Simona Zábranská, Director, Cystic Fibrosis Club
No.4 Ms. Anna Arellanesová, Chairperson, Czech Association for Rare Diseases, and member of the committee, Cystic Fibrosis Club
No.5 Ms. Petra Suchá, Chairperson, Metoděj
No.6 Ms. Petra Adámková, Director, Onko Unie
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